going off Enbrel???
Question:
As you know, I am in a different ballgame than you other Enbrel users. I have been in the clinical trials for more than three years now. I have never stopped the Enbrel because of an infection, (I haven’t had a cold in years) but you do what your doctor tells you to do. In the study, we just keep taking the Enbrel and I have taken it right along with sinusitis, bronchitis, and a bladder infection. I have gotten along just fine this way. But I have no underlying disease like diabetes either. I have taken various antibiotics along with Enbrel with no drug interaction or adverse effects. Also, I am not on MTX, only Enbrel. The longer I am on Enbrel and off all the other drugs like prednisone, the healthier I have become. Now I rarely get sick. IMO, drugs like prednisone lowered my immune system and made me very suseptible to URIs. You asked for experiences, and that is mine, but do what your doctor tells you to do.
Thanks, interesting post. I am also on a high dose of mtx so I have no arguments with being conservative. I am in full agreement with your statements about staying off drugs like prednisone. Enbrel has been a huge help. — MZ
Response:
Gloria dear-Are you moved yet? Char "Remember, I’m pulling for ya’. We’re all in this together." Red Green
Response:
Gloria dear-Are you moved yet? Char
Not yet Mama Char. I’m waiting till after Christmas and also I get my next enbrel batch on Dec. 29th. Have to do my clinical trial bit every four months now, and I get a four months supply of Enbrel. Can’t leave without my miracle drug! What’s the nearest airport from you? I might just try to arrange a stopover in Iowa on my way to Seattle. Gloria
Response:
What’s the nearest airport from you? I might just try to arrange a stopover in Iowa on my way to Seattle.
Are you serious? That would be wonderful. Des Moines is where the airport is. Could you stay over night or just a layover of a few hours.? I can be at the airport with bells on, either way. Might even persuade St. Myron to take some time off work, Just let me know when!! Char "Remember, I’m pulling for ya’. We’re all in this together." Red Green
Response:
writes: What’s the nearest airport from you? I might just try to arrange a stopover in Iowa on my way to Seattle.
There are no airports in Iowa. None that can handle jet aircraft, anyway. But, Iowa does have the best State Fair in the State. <g,d&r Best, Larry
Response:
Are you serious? That would be wonderful. Des Moines is where the airport is. Could you stay over night or just a layover of a few hours.? I can be at the airport with bells on, either way. Might even persuade St. Myron to take some time off work, Just let me know when!! Char
You betcha, Mama Char! I’ll let you know! Gloria
Response:
I stayed out of work today because I came down with a cold. My RD said not to take mtx and enbrel when I am sick so… no Enbrel or MTX for me today. Hopefully I will recover enough this week to take Enbrel on Thursday. I was wondering, how long off the Enbrel before I get a flare? I suspect this varies by individual, but I wondered if you Enbrel users had any experience with it. This will be the first Enbrel injection I have missed and it has been over a year since I missed an MTX dose. I am not looking forward to the rest of the week. Any experiences? — MZ
Hi Mary, As you know, I am in a different ballgame than you other Enbrel users. I have been in the clinical trials for more than three years now. I have never stopped the Enbrel because of an infection, (I haven’t had a cold in years) but you do what your doctor tells you to do. In the study, we just keep taking the Enbrel and I have taken it right along with sinusitis, bronchitis, and a bladder infection. I have gotten along just fine this way. But I have no underlying disease like diabetes either. I have taken various antibiotics along with Enbrel with no drug interaction or adverse effects. Also, I am not on MTX, only Enbrel. The longer I am on Enbrel and off all the other drugs like prednisone, the healthier I have become. Now I rarely get sick. IMO, drugs like prednisone lowered my immune system and made me very suseptible to URIs. You asked for experiences, and that is mine, but do what your doctor tells you to do. Gloria
Response:
I stayed out of work today because I came down with a cold. My RD said not to take mtx and enbrel when I am sick so… no Enbrel or MTX for me today. Hopefully I will recover enough this week to take Enbrel on Thursday. I was wondering, how long off the Enbrel before I get a flare? I suspect this varies by individual, but I wondered if you Enbrel users had any experience with it. This will be the first Enbrel injection I have missed and it has been over a year since I missed an MTX dose. I am not looking forward to the rest of the week. Any experiences? — MZ
Response:
Hi Mary. I had a cold a few months back and missed 2 shots. I was a little more stiff and the pain was back….but I didn’t flare. Hope you get to feeling better! ::::::::::sending healthy thoughts!!::::::::::::: Amy I live in a world of mystery and intrigue. I teach kindergarten.
Response:
Hi Mary. I had a cold a few months back and missed 2 shots. I was a little more stiff and the pain was back….but I didn’t flare. Hope you get to feeling better!
Thanks for the info. Hopefully I’ll react the same way, because my joints take a long time to settle down. It is amazing what Enbrel does for stiffness. — MZ
Response:
Hi Mary, I just started Enbrel, so I don’t have experience to share with you, but my RD said to stop Enbrel if I have a serious infection. When I asked how serious is serious, she said one that puts you in the hospital on IV antibiotics. She said I could call down anytime I have a question, but I took it that meant I wouldn’t have to stop it for colds or minor infections. I hope you are feeling better *quickly* and can get right back on it. Barbara Joy Before you buy.
Response:
Hi Mary, I started Enbrel on Oct 1, 1999. Two weeks later I got a sinus infection and my doctor had me stop my MTX and Enbrel until I was better. It took 3 weeks of antibiotics to get rid of the infection. A week after starting back on both meds I got a "pink eye" type infection and again had to stop( just) the Enbrel for 10 days. My pain increased with the second Enbrel withdrawl. I had a few bad days but comapred to how I felt one year ago it wasn’t awful. I saw my doctor last week and he cut my MTX injections by half and wants me to try once again to taper my prednisone. (I’m on 7 mgs per day now) Thinks maybe the MTX is contributing to the frequent infections. So…your mileage may vary but I did ok for the 2 times I had to go off the Enbrel…but then again I am not working and could baby myself. Hope you feel better real soon and get back on the Enbrel. KAT
Response:
- Hide quoted text — Show quoted text – Hi Mary, I started Enbrel on Oct 1, 1999. Two weeks later I got a sinus infection and my doctor had me stop my MTX and Enbrel until I was better. It took 3 weeks of antibiotics to get rid of the infection. A week after starting back on both meds I got a "pink eye" type infection and again had to stop( just) the Enbrel for 10 days. My pain increased with the second Enbrel withdrawl. I had a few bad days but comapred to how I felt one year ago it wasn’t awful. I saw my doctor last week and he cut my MTX injections by half and wants me to try once again to taper my prednisone. (I’m on 7 mgs per day now) Thinks maybe the MTX is contributing to the frequent infections. So…your mileage may vary but I did ok for the 2 times I had to go off the Enbrel…but then again I am not working and could baby myself. Hope you feel better real soon and get back on the Enbrel. KAT
Thanks! We tried to reduce my mtx level but that ended in a flare. How quickly did you reduce your mtx level? I tried 3mg reduction and it was a disaster. I’d like to get it down but no luck. — MZ
Response:
A couple months ago, I had to stop my Enbrel fpr about a week. I did not experience any flares, but thestiffness and huge fatigue came back full force…boy was I happy to poke myself again. Lori V – Hide quoted text — Show quoted text – I stayed out of work today because I came down with a cold. My RD said not to take mtx and enbrel when I am sick so… no Enbrel or MTX for me today. Hopefully I will recover enough this week to take Enbrel on Thursday. I was wondering, how long off the Enbrel before I get a flare? I suspect this varies by individual, but I wondered if you Enbrel users had any experience with it. This will be the first Enbrel injection I have missed and it has been over a year since I missed an MTX dose. I am not looking forward to the rest of the week. Any experiences? — MZ
Response:
Mary, I had to go off Enbrel for 3 weeks due to a sinus infection also. The worst symptom I noticed was an increase in fatigue. Towards the end of the three weeks, my hands started swelling really bad. Even through two weeks of Enbrel shots, they didn’t go back down to the size they were when I first started the Enbrel. So last week I got a 160 mg shot of DeproMedrol. They’re better now, but now my time is up for using enbrel that was set by my insurance carrier. I have one more box of shots and my doctor is calling them back to get another 2 months; or whatever they’ll approve. I will be so mad if they reject me. Donna F.
Response:
Filed under: Sinusitis Antibiotics
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